I had a perfectly healthy pregnancy. My ultra sounds all came back great. We truly had no idea our baby was sick. I was nursing Jack in the hospital after I had him and I thought his breathing seemed odd. Almost as if his whole body went up and down with each breath. I asked the nurse if his breathing was normal and she assured me it was fine and that babies breathe differently while learning to eat. I didn’t know to ask what his pulse ox came back at. I didn’t even know what a pulse oximetry test was or why they taped that little red light to their little toe. A pulse oximetry test is one of the most important test your baby gets. It measures the oxygen in their blood. This test is a red flag for a congenital heart defect. Unfortunately not all states require it but our state does. He failed his and they tested again and he passed with the lowest possible reading. I had no idea. I went home 24 hrs after having him. Sometimes I am grateful for that week I got with him, my perfect little angel. Before tapvr before the stress and worry. But because he went so long undetected his little body suffered worse than it should have.
|The few photos I have without his scar|
The entire week was horrible but the night before his surgery was the worst night of my life. We still didn’t know what was wrong with him. When you have a baby on life support they sometimes try to fight the machine. His little body would breathe against the machine. Alarms would go off. People would rush in, they’d tell us he was fine they just had to adjust the machine or his medicine. But the last night before surgery he kept fighting the machine. His oxygen levels would drop dangerously low, his heart rate would drop. All night the doctors and nurses would come rushing in to the sound of alarms and try to stop him from working against the machine. Nothing was helping. They paralyzed him, laid him on his stomach and made the machine do all the work.